(DISCLAIMER: If you don’t know what OspA is or what happened with the LYMErix vaccine, then you likely won’t understand this. If you understand “Lyme disease” as just a chronic bacterial infection and don’t understand that it is really Post Sepsis Syndrome then I recommend you first read a few other blog posts HERE, HERE, HERE, and HERE to give yourself the context necessary to digest this. This is not directed towards patients, it is directed towards “faketivists” and “leaders” in the Lyme community who have in my opinion failed us all greatly.)
noun: dichotomy; plural noun: dichotomies
1. a division or contrast between two things that are or are represented as being opposed or entirely different.
There is a deep chasm in Lymeland filled with despair, desperation, and false hope. There is a FALSE dichotomy. We all know that the IDSA and CDC are bad guys and ILADS and the LDA are supposed to be good guys. We have been stuck in the same circular debate for 40 years. 40 YEARS. What do we have to show for it? A lot of suicide, homelessness, endless suffering, financial collapse, and an entire sector of patients living in sheer panic every moment of every day for years on end. It is not just a chronic bacterial infection. This is not a matter of just persistence, and extended antibiotic or herbal therapy is not the answer. The sickest, poorest patients are left to slowly suffer and die, no one is helping them. You can only get help if you can afford it. I know saying this makes me unpopular. I do not care anymore. Not when all of these people and our children are dying. Why are these “good guys” not fighting for us in the only direction that makes any sense? Why do they deny science? I have talked about it before and without fail every time that I do people are quick to have that knee jerk reaction of getting the pitchforks out. ILADS, the LDA, the LDO and all these other entities that we rely on to speak our truths and be our saviors are straight up liars. They seek glory and a celebrity status like cowards. They know what OspA is, they know what the disease is. They know that we are victims of a crime. Yet they ritually curtail the truth and accept your donations for a self fulfilling indulgence. They reduce the message to suit their own agenda, which is still up for debate. They abridge the truth and prolong everyones suffering. They repeat the same bullshit over and over, year after year, about “we need more research, more antibiotics, more awareness!”.
(ATTENTION: Patients that are reading this, NOT ALL ILADS DOCTORS ARE BAD. I am speaking to the organization in general in terms of being a profit generating business. I am not calling your doctor anything else but NOT A SCIENTIST. I feel like doctors should know what Pam3Cys is and be able to figure out what the disease really is, sure. But thats another topic for another time. So please, bare with me and make it to the end of this post so that you are sure you understand what I am actually saying. We need to take ourselves out of the equation to be able to see it for what it really is.)
The sickest, poorest patients are not allowed to grieve. We are told that we are terrifying and hopeless. Our peers demand that we stay the course and they say things like “be well” or “think positive” or “nothing is impossible”. Being well, thinking positive, and dreaming have never cleaned up the vomit, made anyone less sad about missed memories with their children, or paid the medical bills. It sure as *%&$ has never undamaged any B cells or reversed white matter lesions in the brain. Why are we not allowing very sick, very poor people to simply say the words “ILADS couldn’t help me, and I’m dying” without being accused of vilifying this savior we are all supposed to be benefitting from? This is a problem and a behavior promoted by “leaders” and “advocates” in Lymeland. TruthCures has literally been banned from certain groups and forums. Antibiotics don’t fix B cells. They never have, and they never will. ILADS does not offer ANYONE help with that and they can’t as long as they continue beating the persistence drum by itself.
When we don’t allow the fact “antibiotics won’t fix the B cells, ILADS has never helped with anyone with that” to be said freely you are effectively condemning fellow Lymish to die. It is willful ignorance on your part and on these organizations who have vowed to help, but haven’t actually done anything. Do you realize that one of these “non-profit” Presidents makes $90,000 a year? This is America, where liars have been profiting off of sick people for generations.
The LDA and ILADS have known about OspA for at least 10 years. They know that people are dying. They know why they are dying.
SPECIAL REPORT: LDA MEETS WITH FDA ON LYMERIX
On January 22, 2002 in Bethesda, MD., the LDA was able to get a private meeting with the FDA on the vaccine issue, despite reluctance by the FDA to grant the meeting. Congressman Chris Smith helped facilitate the setup of this meeting.
Patricia Smith, President, Lyme Disease Association
Notice the date on that. Kathleen Dickson blew the whistle on the LYMErix vaccine and Dearborn in 2001. Kathleen Dickson wrote the original Klempner rebuttal for ILADS in 2001. Kathleen was a member of ILADS. Has ILADS or LDA ever told you that you were a victim of a crime? Have they ever told you that OspA is Pam3Cys? Have they ever told you that the immune cells in the spinal fluid of Lyme victims could be mistaken for lymphoma or leukemia (Click HERE for more on this)? Who’s side are they really on? It seems they are only on their own side, and I am left to assume that they don’t care about any of us lowly patients. They just want our affection and our money. They knew it, they know it, yet they don’t tell YOU the most important thing you need to know to be able to save your own life and the lives of your children.
These charlatans have created a situation in which their victims defend them by pushing bills to protect their theft. This is the false dichotomy. The entities we believe to be on our side are not actually on our side.
It is a form of theft, to deny patients the truth about the disease that is killing them and then accept cash for treatments that they know are not working. We need to take the time to know the history behind these entities who have turned into profit generating businesses. When patients don’t recover from extended therapies they are thrown out like trash. I have witnessed this. My friends have witnessed this. We have consoled these patients ourselves and I’m telling you right now, that is true hopelessness. I see it every day. We must not forget that this is about the PATIENTS. Some of these patients are CHILDREN. Why aren’t these organizations talking about the one thing that would help us all? I can only speculate.
This really is like a variant of Stockholm syndrome among patient advocate “leaders”. I don’t know what that makes our abusers, other than abusers. But we need to see this for what it really is, and NOW. We don’t have time to waste delivering this message in a way that isn’t “scary”. We don’t have time to waste easing people into the truth. I’ve said it before and I’ll keep saying it until we are all on the same page- the truth is not painless, but denial does not make it any less of a truth. It will not go away simply because it sucks. Why are these advocates taking the lives of the patients they say they are helping into their own hands and deciding for them that they are not strong enough to hear the truth? Because that is what has happened. TruthCures has been banned from groups and the reason is always the same. “This is just too scary, especially for new people. It creates hopelessness among our members“. That is NOT okay! It is irresponsible and dangerous. This is life or death.
Just know that when you deny say 10,000 people the truth because it’s painful, then the truth does eventually come out and you have to own up to what you’ve kept from them, that is on YOU. As a human, to another human, please consider if you can live with that. That you kept information from other humans that is detrimental to their very survival. ILADS and the LDA have a lot more than a mere 10,000 people looking to them for answers, it’s in the millions I’d assume. We are supporting the people who are keeping us in this situation of endless torture and we do not allow each other to know about it.
The only people who will save us, is us.
We have chronic denial in Lymeland. It’s like being swept away in the river and you keep going under. Meanwhile we have ILADS and the LDA standing on the shore telling us that we need to give them a donation or cash before they will pull us out. Then we fulfill their requests and they merely toss us a straw to try and breath better and by then our heads are under the water and our lungs are starting to fill up. If you don’t have the cash, then you’re on your own. This same metaphor works for our friends, families and doctors. They shout at us from the safety of the shore “I love you, I’m sorry, think positive and this will all stop!” instead of jumping in to pull us out.
We are chronically abandoned, abused, demoralized and hopeless. This disease is not a chronic bacterial infection. OspA is Pam3Cys. Lyme patients are victims of a prosecutable crime. Why are the self proclaimed good guys refusing to talk about this? We have all been lied to. Half truths will not save us, look at what good keeping the focus on persistence has accomplished the last 40 years. Nothing. It has achieved nothing but prolonging suffering, financial ruin and ultimately death.
A solution to all of this exists.
“People need to understand that at the root of the problem is a crime of scientific fraud, and that the reason we never get anywhere is because the criminals have all the power, hold important positions at universities and federal agencies, and maintain the FALSE DICHOTOMY argument of persistent infection or not, through controlled opposition, bought media, crooked journal editors, pharma funding, medical societies, political influence, and disinformation campaigns within the patient realm.”
People really are dying, and you’re worrying about something frightening them before that happens rather than trying to prevent it by any means necessary?
With that in mind, that this is life and death and knowing so many are bereft of hope and out of options there is a high level of urgency. This should scare people. This is an epidemic of vast proportions and we shouldn’t waste another moment making this right in the only way profound enough to mount real change. We don’t need money for research, more antibiotics or more awareness. The disease is not shrouded in mystery. LYMErix showed us that this isn’t about persistence alone and that it is much worse. It is time to hack at the roots because when the tree finally falls all of the branches will break, too.
We have all been lied to.
If you got better, great. But what about the rest of us, including these children?
Other blogs and websites on the same topic:
We are a small group of concerned citizens who believe that nobody should suffer from Lyme disease, ME/CFS, fibromyalgia, Gulf War syndrome, or other “unexplained” syndromes—because the science exists to explain the mechanisms of disease.
We are here to tell the truth about these mechanisms, as well as the reasons we are in this deplorable situation, with millions unable to obtain a proper diagnosis or treatment.
The truth is that there is an entire class of immunosuppression diseases that are being denied by the government and the entire medical establishment. There is no National Institute of Immunosuppression and Infectious Diseases—only the opposite, the National Institute of Autoimmune and Infectious Diseases (NIAID). Understanding how LYMErix taught us this fact will open the door to understanding the widespread devastation of the neglected, “invisible,” and mystery diseases. TruthCures.org
“We continue research that’s been done and proven 1,000,000 times that spirochetes persist. We already know this and so does the CDC crooks. Spirochetal diseases are not curable and un-eradicable ie; Syphilis. But we also know by the CDC’s own published research it’s not about persistent infection, it’s the outcome of post-sepsis syndrome from Pam3Cys or OspA triacyl lipoproteins shed by Borrelia spirochetes. It’s a non-HIV B-cell AIDS illness.
“We don’t need anymore research nor funding or “awareness”. What we and all activists, non-profits and humanitarian organizations need to be doing is focusing all efforts on demanding justice. Instead of funding research and promoting awareness we need to be standing for truth, working together on supporting and sending our warriors and activists who aren’t bedridden or completely housebound to DC to occupy justice. We need an army of warriors. We need TRUTH, JUSTICE AND PROSECUTION. Nothing else matters until then, it never has it never will. This is a political crime.”
“What’s all the fuss about !! ??
LYMErix caused the same disease some would have you believe can be cured with antibiotics. And this has been going on, this false dichotomy (and truly FALSE, now, as you have seen) since 2002 (LDA and the FDA over LYMErix).
Why do they want to harm you further, all of them? ILADS, LDA, and the Facebook Lyme group queens? WHY do they want you neglected eternally, and continue to suffer the trauma of trying to fight for Social Security Disability too?
Why wont they let you see what is available to treat Post-Sepsis Syndrome (the treatment appears to be the same for lymphoma: A B cell depleter chemo plus antivirals plus stem cells – find out for yourself) ? Why wont they REALLY validate your illness?
It ain’t about us, it’s about you.
Oh, and we could use another 99,980 bloggers. So, holla if you’d like to give it a shot. Wix and WordPress are free. And here we have shown you that the Lymediseaseassociation.org, lymedisease.org, and ILADS.org don’t care to tell you what is true about Lyme, despite knowing all about it since at least 2002. LYMErix alone causes the post-sepsis syndrome that seems to make the healthiest people sicker, long term.” https://crymedisease.wordpress.com/2017/08/12/faktivists-and-the-consequent-desperation-i-wish-i-could-help-you/
Joni and Gabby-
Hat Tip here to Joni Comstock & Gabby Klein (May12.org) on the Strategies of Tobacco Science and how they work our phony activists, like the non-non-profits of Lyme and ME/CFS: “Mongoven, Biscoe & Duchin: destroying tobacco control activism from the inside”
[Describing the various types of activists]: “Opportunists, those who are motivated by power, success, or a sense of their own celebrity, will be satisfied merely by a sense of partial victory.”
We call them queens. And that idea, to call them queens, comes also from the bible, Revelation (18): “7 As much as she hath glorified herself, and lived in delicacies, so much torment and sorrow give ye to her; because she saith in her heart: I sit a queen, and am no widow; and sorrow I shall not see.” https://www.biblegateway.com/passage/?search=Revelation%2018:6-8&version=DRA
Translation: “I am a queen, and do not suffer empathy or sympathy for another’s misfortunes. It’s All About Me!”
“‘… My question to support group leaders is this: How do you propose to do your job as a support group leader and help those who are most in need, when hope does not lie in a treatment, a prayer, or a gentle hug? Hope lies in people caring enough about the sickest among us to take a stand and force real change. It is extraordinarily cruel to banish those who see only two alternatives to their suffering: prosecution of the Lyme crooks, or death.
“’Stuff happens when people are properly informed and angry enough to make it happen. Where is the anger? Where is the outrage? Where is the real activism? This is a war. It will not be won with gentle hugs or doctor protection bills. It cannot be won by supporting anyone who denies the undeniable science of the disease. It will be won by those of us who are mad as hell about our sisters and brothers being tortured to death. I refuse to let this continue another 20 years, or 10, or even 5. I intend to get this done,” she says.’”
It is not “negative” it is called thinking.
“Some activists who analyze what activists do are called “negative” by some in the ME, ( the Medically Abusive Definition ) CFS, and Lyme community. This kind of analysis is not negative.
“When you see something which does not work you state it and analyze it. The process is called “thinking”. Claiming it is “negative” dumbs everything down. It puts up a block to further analysis. It turns activism into nothing more than follow the leader. Activism becomes stagnant, and no one learns from their own and others experience. We need to think, analyze, and learn to adapt to get better at what we do. Different ideas are awesome. Anyone who claims different ideas are “negative” are not engaged in analytical thinking. They do not learn from history and therefore they do not adapt. If they understood this they would not use a trivial term such as “negative” http://blog.researchfraud.com/2016/07/06/me-cfs-and-lyme-activists-who-think-are-not-negative/
“One of the most important things to understand about activism is exposing the REAL truth about the matter. For example, when a disease is politicized, false truths often leave sufferers with misleadingly false treatment options that are set in place by governing bodies that claim come from evidence based practices. The problem here is that, people who are desperately ill will do any thing to get better. However, little do they know that these treatments are merely a wolf in sheeps clothing. To elaborate, the cozy fur is used to keep patients warm and comfertable, however once the outter layer (of the matter) is all used up, the painful truth (about misleading treatments) bears its sharp teeth.
“Enter Lyme Disease. One of the greatest conspiracies to ever hit western medicine. Prior to the 90’s, Lyme Disease was recognized as a neutologic, arthritic, and immune suppressing disease. However, after after a Lyme Disease vaccine (LYMErix) was developed by CDC in the 90’s, many people were given OspA, a fungal antigen which gave them the same symptoms of Lyme Disease without them being exposed to the Actual Spiroche. As a result, The CDC/IDSA falsified the testing so that it would omit people who became sick from the vaccine. Subsequently, A Lyme Disease diagnosis reduced to solely an arthritic disease (ommiting 85% of all neurologial LymeDisease cases). As a result of vaccine injuries, the CDC/IDSA changed the standardized testing to omit OspA (what caused the vaccine injury and the real cause of post-sepsis syndrome in Lyme patients) from the diagnostic criteria in order to avoid being prosecuted for the lyme cryme. Meanwhile, today hundreds of thosusands of people a year arw becoming ill each year. In addition, millions continue to suffer and/or die a slow painful death so that the CDC/IDSA can hide the Lyme Cryme.
“As a side affect of the corruption caused by the CDC/IDSA, the wolf in sheeps clothing come to comfort the oh so desperately sick Lyme Disease patients. Millions of sufferers believe that killing the spiroche will save them from this dreadful disease. The problem is, once the treatments are stopped, the real B-cell aids, post- sepsis like disease bears its teeth and leaves Lyme Disease patients struggling with an AIDS like disease caused by the fungal shedding (OspA) antigens caused by Lyme spirochete and the LYMErix vaccine…” https://rjspiritualityandthetruthaboutlymedisease.wordpress.com/2017/06/30/lyme-disease-treatment-a-wolf-in-sheeps-clothing-3/